Age: 5  Year Diagnosed: 2014  Location: Rancho Santa Margarita, Ca


"Classmates are always telling her what she can't eat.  She comes home crying asking if she can still eat donuts, or cake, or cupcakes.  The "Hailey can't eat sugar" topic has got to change.

Even at age 5 Hailey believes that by adulthood she will be cured." Best piece of advice from Hailey's mother: Take a very deep calming breath (maybe a few of them!) and relax.  There will be good days and bad days.  Surround yourself with on-line and local support groups.  Seeing others going through the exact things you are is extremely comforting and validates all of your personal efforts and decisions. You can and will be ok.